Federal health data is fragmented, slow, and doesn't represent everyone equally. The systems that track births, deaths, and outbreaks are outdated, and the data that could answer the country's biggest health questions is hard to link and hard to access.
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Set federal minimum standards for how fast health data arrives, how fully it represents the population, and how consistently it breaks down by group.
Modernize the systems that track births, deaths, and disease outbreaks.
Let researchers combine and analyze sensitive federal data under a strong statutory privacy floor.
Make federal health data publicly usable by default, and aim enforcement at the data public health, research, and quality depend on.
Set rules for new kinds of health data and for the data that trains AI systems used in federal research.
Establish a cross-HHS body with authority to set milestones and coordinate budgets, protected by law against being suspended or ignored.